Vascular Birthmarks Foundation Forum - View Single Post - My daughters PWS
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Old 06-05-2008, 05:35 PM
nickbar nickbar is offline
Senior Member
Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

DId you say she had MRi with contrast to rule out Sturge Weber Syndrome?

If you need more information, please let me know and I can direct you to the SWS Community.

Laser will probably be very beneficial for your daughter. I know December seems like a long time to wait...but it will be here before you know it. Enjoy your baby as they grow up so quickly. I know the UNKNOWN is often the hardest part. Hang in there.

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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