hello. welcome to the group. I'm glad to hear you're going to children's hospital Boston. They have a great vascular anomalies clinic. There aren't too many cases of people with multiple lymphatic malformations, but there are some. They sometimes refer to it as Lymphangiomatosis(I think). Just meaning that there are lymphatic malformations in multiple areas. Good luck with the appointment and everything.
what makes you different, makes you beautiful