Vascular Birthmarks Foundation Forum - View Single Post - 15 years old with a PWS
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Old 11-06-2008, 01:43 AM
erih erih is offline
Join Date: Nov 2008
Location: Illinois
Posts: 56

Hey Claire!
Thanks for telling this story. I also have a PWS on the left side of my forehead and eyelid and have had a similar experience. No real teasing that i can remember, except in 3rd grade by a 2nd grader...
I can tell that some people are a little uncomfortable about it, but if they stick around to get to know me, they forget it's there--I'm often surprised myself when I glance in a mirror! Or when a little kid points it out.
The hope a dream and the wings to be free
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