Vascular Birthmarks Foundation Forum - View Single Post - SWS questions
Thread: SWS questions
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Old 01-23-2009, 09:20 PM
xrox xrox is offline
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Join Date: Jan 2009
Posts: 15

Originally Posted by missy View Post
The problem with studies associated with these syndromes is that the syndromes are so very rare, it's really difficult to find enough people to test!!

Could you post a link to that study or tell me where I can find it? I'd love to read that and I don't think I've stumbled across it yet. I'd really like to send it to Glenda and see if she knows about it.

In the meantime, though... what has your pediatrician said regarding glaucoma screening? It's not like a screening for glaucoma is expensive or invasive... it's annoying, yes. We're all supposed to get our eyes checked anyway. What is the objection?

It was read from the clinical portion of the following

Our pediatrician and family physician both said it was a harmless vascular birthmark that should go away with time. I'm assuming they mean salmon patch but it sure looks like PWS to me (dark red). I would really like an expert to diagnose it as PWS or salmon patch since it is such a sensitive area regarding SWS and glaucoma.

I can post a nice picture of it later tonight.
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