Vascular Birthmarks Foundation Forum - View Single Post - daughters pws growing
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Old 08-07-2009, 05:11 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

Can you give me more details of her diagnosis of PWS? If you prefer you can email me directly at the address below. Explain what you mean by growing? Speading out or thickening? Where is she being seen for this? Any treatments to date, etc.

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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