Hello, thank you Missy for emailing me.
I highly recommend you get an opinion from an experienced vascular birthmark specialist. What you were told does not sound correct for a pws. I know Miami might not be close to you, but I would recommend getting an opinion from the following specialist. Also, please not the physicians list on VBF for Florida. VBF has other patients recommend the doctors on our list or VBF has direct knowledge of their expertise.
Dr. Anna Duarte
3100 South West 62nd Avenue
Miami, FL 33155
305 669 6555
Treats hemangiomas and other vascular birthmarks
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)