Vascular Birthmarks Foundation Forum - View Single Post - Does anyone know much about Tufted Angioma and KHE?
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Old 01-13-2010, 08:01 PM
Gembea Gembea is offline
Junior Member
Join Date: Jan 2010
Posts: 4

I'm in Sydney. We are awaiting till next week to see the Specialist dr to find out more. So far have been told that she will only need treatment if the blood tests shows her platelets level drops or any changes to the angioma on her arm.
Im aware that it is a rare case but was wondering if there is anyone who has experienced it and how they manage it....
Thanks Missy for your welcome greeting... this is a great Foundation to help families to stay in contact around the world...

P.S. she has had twice biopsy... the results shows that both of angioma and Kaposiform Haemangioendothermia (KHE)........

Last edited by Gembea : 01-13-2010 at 08:04 PM.
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