Vascular Birthmarks Foundation Forum - View Single Post - Heart Problems and CMTC
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Old 03-31-2010, 12:12 AM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Rather than listing her condition as a syndrome, perhaps listing each expense as a separate line item might help. Also, ask if they have a parent advocate, "ombudsman", or volunteer to help parents... sometimes those people outside of the system know the loopholes.

Have you been able to consider tefra?

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