Vascular Birthmarks Foundation Forum - View Single Post - Parkes Weber Syndrome - Micro fistula
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Old 08-09-2010, 07:28 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Hi and welcome!

I can't think of anyone who describes that exact set of symptoms and signs, but other parents will chime in soon.

What is your daughter's prognosis? Is there no therapy at all that would help her?

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