Vascular Birthmarks Foundation Forum - View Single Post - Just Diagnosed- lots of questions
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Old 09-16-2010, 06:24 PM
abatie abatie is offline
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Join Date: Oct 2009
Posts: 240

I had figured out what Becca had too! I had figured it out prior to our specialist appointment. We have been told that Becca's heart issues aren't related to her CMTC but she does have three holes in her heart that are a significant impact. The sleeping issue is part of CMTC (especially early on and during colder weather). We went through long periods of sleep with Becca. She does sleep with a heated blanket and a special heater during the winter. The summer was great for her. We are now gearing up for another long winter.
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