Thanks Kelly and JacobsMom! Our appt with Dr. Frieden is Monday Oct 4 so I will let you all know how it goes. I'm sending some pics to that email address as we speak.
It's so nice to have this forum, people just do not seem to understand these birthmarks. I keep hearing about how common they are, but people really do stare, point and ask what it is. It's so strange to me--I just don't think I ever would have done that!