New to the board...23/male with lymphangioma of the right orbit
Now I'm not sure I am on the right board but I am 23 years old and I have a lymphangioma behind my right eye which has caused sweeling of the lid. I had surgery in 3rd grade to debulk the tumor and in 1998 I had a bleed on my brain which caused my to become epileptic. I've only had 3 seizures in that year but I still have a lot of things to work out.
I also have some sort of malformation or possibly a vein on the right side of my forehead. Doctors are unsure exactly what it is at the moment.
This is the first time I have some across any sort of posting for a similar conditon as the lymphangioma and I'm hoping the least I can get out of this boards if some support. I've dealt with a lot and still am. I'm hoping to help as much as I can myself.
Sharing our stories and experiences is the best support we can give to each other. We know what it's like to live with these kind of conditons and I look forward to sharing our posts.