Vascular Birthmarks Foundation Forum - View Single Post - New Here and Have Questions
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Old 11-22-2010, 05:07 AM
Chickadee Chickadee is offline
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Join Date: Nov 2010
Posts: 2
Question New Here and Have Questions

Hi everyone,

I just found this great, informative site, and have spent some time reading, but I haven't found anything that answers a question I've got.

I have a spinal cord AVM and aneurysm. The AVM ruptured a few years ago and both the malformations were embolized four years ago. The embo 'obliterated' the AVM, but not the aneurysm. My latest angiogram two months ago shows the AVM has grown back, and I'm hoping it will be embolized again in a few months. These are at the C-7 to T-2 levels and are intramedullary (inside the cord).

I was born with a red (sometimes purplish) mark on the back of my neck that goes up into the hairline a bit and extends down to about C-5 or so. My mother had told me it was called a stork bite and it was never a big deal to me.

In the last year or two though I've been wondering if there is any kind of connection between stork bites and AVMs like the one I have in my spinal cord. Also, it didn't occur to me until recently that maybe I should show it to my neurologist and neurosurgeons - I don't know if it's something they need to know about or not?

In light of the fact that I have the two malformations I'm wondering if this might be a PWS, and can I tell the difference, or would the neurologist be the one to tell?

When I press on it the spot where my finger was lightens and then turns red again - don't know if that means anything.

I would appreciate any information anyone can give me about this.

Thanks for reading this.
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