I have learned a lot over the past 4 weeks as my granddaughter has several on her face and one in her airway. We had to take her to the regional Children's Hospital in Seattle to get answers as every doctor near us wanted to diagnose her with croup at one and a half weeks old. Babies don't get croup at that age and we have come to find out that 85% of babies with a "bearded" Hemangioma, which she has, have airway H as well. They have a team called vascular anomalies at Children's in Seattle and since Propanalol is working with H's they don't believe in the wait and see approach. I hope you find a doctor that will help!