Vascular Birthmarks Foundation Forum - View Single Post - 5 week old with forehead hemangiona-please help!
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Old 03-09-2011, 01:57 PM
momof3inpa2009 momof3inpa2009 is offline
Senior Member
Join Date: Dec 2009
Location: PA USA
Posts: 112

Hey phoenixihc - your daughter's deep hemangioma under her eye is there just some extra skin there now? My daughter has one above her eye on eyebrow and today is actually day 3 of no propanolol. We have weaned her off slowly. She is 18 months btw. Anyway my daughter's hemangioma looks great but I see some extra skin there. Sometimes I think her hemangioma is "back" and other times I think it's just extra skin.

Kate: There's things that can be done so that it does not get larger. Do your own research on it and get different opinions. It's frustrating at first but so worth it!!!! Good luck!
Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now- 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. Surgery was a success!!! April 2014
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