Vascular Birthmarks Foundation Forum - View Single Post - What age did you wean from Propranolol?
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Old 05-09-2011, 08:33 AM
Texas75 Texas75 is offline
Junior Member
Join Date: May 2011
Posts: 3

My daughter has an orbital hemangioma and has been on propanolol since 8 weeks. We do not have the ability to see exactly what is taking place with her hemangioma due to its location but we did attempt to begin to wean her at 12 months. We felt that we saw some puffiness appear around her eye during that process and have decided to remain on the treatment. She is 15 months this week. We will probably readdress the weaning process soon. We have been told that hemangiomas in and around the eye tend to be a bit more aggressive so the lifespan may be a bit longer in those cases. Ours is a very rare case, have yet to find a fellow case, so we find ourselves in uncharted territory quite a bit.
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