Vascular Birthmarks Foundation Forum - View Single Post - Success treatment is finished
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Old 05-12-2011, 07:59 AM
bigfishboy bigfishboy is offline
Junior Member
Join Date: Apr 2011
Location: Oahu, Hawaii
Posts: 1

SOOO happy to hear the success of the treatments. I sent you a message but I'm hoping this finds you, incase that doesn't. My son is only 7 weeks old and starting the very long journey your daughter has endured. You see, he has KHE on his face and neck. It started to effect his breathing and eating at one point when the tumor was trapping so many platelets that his dropped down to 6. He was started on Vincristine and steroids (they are now slowly taking him off the steroids) and it has brought it back to a state where he can eat and breath normally. We were in the hospital for the last three weeks straight and we were just able to come home. We aren't sure if this will ever get smaller or if we have just stopped it from growing and eating his platelets. Your success just makes me so hopeful and to get to speak with you and share pictures would mean the world to me. Thanks so much for your time and God bless your daughter. Enjoy being free of this struggle.
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