Vascular Birthmarks Foundation Forum - View Single Post - H inside mouth, do I need a dentist that knows about H's?
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Old 07-06-2011, 03:44 AM
blessedmom10 blessedmom10 is offline
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Join Date: Sep 2010
Posts: 23
Default H inside mouth, do I need a dentist that knows about H's?

My ds is 11 months old and his first tooth is breaking through. He has the purple coloring of Hemangiomas inside his mouth (lower gums, under tongue and on bottom of tongue, and in partiod gland--found on MRI). His other H's are in his airway (subglottic) and lower lip. He takes Propranolol, but they want to start weaning at 12-15 months. He has not had any problems other than excess drooling. No, not the kind with teething. Even at 2 weeks old, he would have a "puddle" on the sheet when he slept and he soaks several bibs a day--my guess the partiod gland H, even though no one has said that.

Do I need to be "doing" anything due to the H in his mouth? Other than a pediatric dentist, do I need to look for a special dentist to check him out? I asked the "hemangioma doctor" (plastics dr @ cranialfacial office) about this. His response at 6 month visit was a nonchalant--they (hemangiomas) will stop growing before his teeth come in.

Is teeth and issue? Are there problems down the road?

Thanks for any responses
ds dob 7/2010, hemangiomas and MSPI-on Elecare formula--low wt gain (like his sister)
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