Vascular Birthmarks Foundation Forum - View Single Post - New and unsure
Thread: New and unsure
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Old 09-02-2011, 05:59 PM
sweetkandy sweetkandy is offline
Junior Member
Join Date: Oct 2010
Posts: 4
Default response i had gotten from Dr. Nelson

okay, i emailed, including a photo of my birthmark, the Ask the Port Wine Stain Expert on the website and the response i received was as follows:

"Based on the photograph you forwarded to the Vascular Birthmarks Foundation, I would be suspicious that you have underlying Klippel Trenaunay Syndrome (KTS). I would recommend that your primary care physician order a MRI with gadolinium contrast examination of your left upper extremity to rule out underlying KTS."

I have yet to have said test done, but have googled the syndrome, and though there is little to find about it, this may have merit in my case. as for your second opinion, i'd go with what they are telling you. because while i've been told it's not a port wine stain, i've not been told it's anything else either.
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