Vascular Birthmarks Foundation Forum - View Single Post - hair loss and pws
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Old 01-11-2003, 03:40 PM
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Default hair loss and pws

I'm very curious if anyone else has encountered this dilemma? I have a huge pws which is on my right ear, eardrum, neck, face and over the top of my head. It took forever but when I was finally able to grow a beard and grow my hair a bit longer I felt pretty much regular. Now that I've turned 50 the hair (only on the birthmark is disappearing). I'm totally devasted and am at the point that I don't want to go out the front door anymore. When all the hair is gone, I'll look like I have a map of Asia going all over my head. With hair on the other side.

Has anyone else encountered this or come up with a way to deal with it sanely on a day to day basis?

Thanks a bunch. Chris
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