Vascular Birthmarks Foundation Forum - View Single Post - hair loss and pws
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Old 01-12-2003, 09:59 PM
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Default Re:hair loss and pws

Hi Hank. Sounds indeed as if we have a lot of the same characteristics. As far as the beard goes: my facial hair has always grown at the same rate although the right side has always been just a tad thinner. My birthmark covers my entire right neck from my right shoulder and all the way up the right side of my face but then turns back just above the jaw goes over my ear and on and up over the top of the back and right side of my head. The part that protrudes onto the face is covered by my beard. That part seems to be hanging in there. I've had my beard since being your age. Hang in there, I didn't have a full beard until I was in my mid 20's. I think the worst part for me now is dealing with this all over again. I've really had some mixed feelings since this has all popped up again. I thought it was enough that I had to suffer with all of this through childhood. Now that it's disappearing at an alarming rate on ONE side of my head is another can of worms! I'm quite peeved at the guy upstairs about this, if you know what I mean?!

As far as the girls go. My wife thinks I'm totally nuts. She says screw everybody else. She's my angel, thank god! I've found over the years that living with this has made me stronger in other areas. I've had to rely on personality and my quick wit to get me by. I did find that once people get to know me I'm always popular. But it's a real chore, as I know you must, to be strong and keep up appearances that you're not self conscious etc. It took me years to get out of being such an introvert but I feel it all coming back again now. Hence me looking on the Internet for stuff like this. In my case I think I'm going to have to resort to getting some kind of wig or something. I just don't know how else to deal with it. My wife and family say: what's the bid deal? A lot of men go bald. My answer to that is: not on just one side of their head! And to have a map of Asia on it doesn't help any either! I also have had hearing loss in the right ear since birth, and it has gotten much much worse. I'm almost totally deaf in that ear now.

Unfortunately I don't have any answers for you. From what I've learned about the hair thing is that there's nothing you can do. Hopefully you'll luck out as I did in the beard department. I feel for you bro'! Keep in touch. If you'd like my home e-mail address just holler.

All my best. Chris
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