Vascular Birthmarks Foundation Forum - View Single Post - Adults With Phace Syndrome? Anyone?
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Old 04-28-2012, 09:32 AM
mel38 mel38 is offline
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Join Date: Apr 2012
Posts: 1
Default to anyone out there

Was born with a strawberry on forehead in 1974. They burnt it off with dry ice. I had trouble mentally my whole life and never knew why. Found out at 27 that i had dandy walker varient. Just read on internet today i probably have phace syndrome also. I live in rural ky. I have been on tons of meds. I have almost died 2 times once from meds once from hydrophalus. I completely understand anyone who is having trouble finding answers. There is a professor in seattle washington who studies dandy walker. Go to the website called dandy walker alliance they have the info. Goodluck and may god bless.
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