Vascular Birthmarks Foundation Forum - View Single Post - Life with an unmanagable PWS
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Old 05-06-2012, 01:49 AM
kaykay kaykay is offline
Senior Member
Join Date: May 2006
Posts: 233

thanks for sharing your story Joe. It might be hard for parents to hear sometimes but yes, it is still up to use to work out our PWS issues on our own.

To myliitlepuddin, my view is if it is a health issue by all means yes get treatment. my mother wasn't able to afford treatement for my PWS. No fault of hers but i wish it hadn't been so. health issues grew as i got older. I know you really feel for your daughter when people comments, how it affects her, but just help her to be strong and support her when she needs it. It would be nice that no one ever comments but thats not reality.
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