Vascular Birthmarks Foundation Forum - View Single Post - VM and Dr. Levitin
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Old 07-07-2012, 12:11 AM
dancermom dancermom is offline
Join Date: Jun 2012
Posts: 44

Hi, mom, you may want to visit AVMSurvivors. There are over 100 members there with AVMs or VMs of the head and neck. I have heard good things about Levitin. My son's AVM was removed by Dr. Suen. I would hope that the doctors would be writing letters to your insurance company about why the sclerotherapy is not optional and should be covered. Insurance companies have very limited knowledge of AVMs, so the docs usuallly have to go to bat for patients to get the proper coverage. Best wishes for your daughter!
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