Vascular Birthmarks Foundation Forum - View Single Post - PWS on leg and leg length discrepancy
View Single Post
Old 08-10-2012, 02:43 AM
abatie abatie is offline
Senior Member
Join Date: Oct 2009
Posts: 240

Our daughter has a LLD in her leg. She was having pain in her hip, back, and knee and so we had a custom lift made for her. Took care of all the pain. Becca was also evaluated for KT syndrome at Mayo (we wanted to see Dr. Driscoll but saw Dr. Brands and Dr. Nash for that part). Anyway we see someone closer to home now. Becca doesn't have a PWS but has CMTC (it is often misdiagnosed as a PWS). They basically have told us that action is needed when it is impacting. If it isn't causing problems then don't do anything.
Reply With Quote