Vascular Birthmarks Foundation Forum - View Single Post - PWS on Leg - Concerned parent - what to look for
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Old 08-12-2012, 09:24 PM
Jaja Krijesnica Jaja Krijesnica is offline
Junior Member
Join Date: Jul 2012
Posts: 2

Hi nataliegrace,

I wrote about my daughter she has PWS on the right leg, buttocks, tongue, lower lip and forehead, also the right leg is thinner and shorter, about 1.5 cm.
Exploring all the vascular malformations seems to me that this might be a KT. Soon we go to a second opinion.
Can you send me your email and I would like to send you some pictures of my child?
My email is
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