Vascular Birthmarks Foundation Forum - View Single Post - Fatty Arm
Thread: Fatty Arm
View Single Post
Old 02-06-2013, 12:01 PM
dancermom dancermom is offline
Join Date: Jun 2012
Posts: 44
Default UK group on AVM survivors

Hi, there is a UK group on that you may wish to join. There are other members who have arm avms on that group; perhaps you can get some doctor recommendations. There are over 75 members with arm avms on the website from all over the world.

Your condition sounds like Parkes - Weber Syndrome, which is caused by a mutation in the RASA1 gene ( PWS may be a spontaneous mutation, but can be inherited.
Reply With Quote