Hi Deborah and welcome (back)!
You are the FIRST I've heard about with Cobb Syndrome and I've been around here for 14 or 15 years now. I'm hoping it's not just you out there alone either, but I'm afraid you might be.
Other than PWS along the spine, what other indicators of the disorder are there? And how does it affect patients? And what is the prognosis?
If you start answering my questions, I'll come up with a lot more!
Anything we can do to help you along, please let VBF know.