Vascular Birthmarks Foundation Forum - View Single Post - Proper dosage and use of propranolol while sick
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Old 09-23-2013, 07:10 PM
kg8183 kg8183 is offline
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Join Date: Jun 2013
Posts: 18
Default Proper dosage and use of propranolol while sick

Hi guys,

Have been away from the forum for a little bit. I am here to give an update and also ask few questions.

Thankfully, the ulcerations on our son's hemangioma healed in about 5 weeks after 1 laser pulse dye therapy, dressing the wound 2 times a day with Mupirocin Calcium 2% cream and the continued use of propranolol. It was a very tough 5 weeks, but my wife, son and I hung in there. Thank you all for your support, we really appreciate it. The hemangioma has gotten significantly lighter in color and is not as swollen. However, for the last 3-4 weeks we have not seen progress. In fact, it seems that it is getting a little more red and, perhaps, a bit raised.

So here are my questions:
1) Currently, my son, who is just over 5 months of age, has cold and the typical symptoms associated with it (i.e. low fever in '99s, cough, congestion, runny noise, vomiting, reduced appetite). We saw the pediatrician today and she confirmed that he does not have ear infections and the lungs seem to be ok,too. We are little concerned about giving him propranolol while he is sick. What is your experience/knowledge regarding the matter?

2) My son continues to take 0.7 ml of propranolol 3 times a day. At the time of prescribing this dose, with his weight taken into consideration, it was effectively the regular 2 mg/3 time a day dose that seems to be common amount prescribed for the treatment. Today, our son's weight is 14 lbs 8.5 oz. If I adjust the dose per his weight to the 2mg per kg of body weight, he should be taking approximately 1.1 ml every 8 hours (3.3 ml in 24 hrs). In fact, the 0.7 ml 3 time a day translates into 1.27 ml per kg of body weight, which is significantly lower than the accepted norms. The specialist insists that we continue to give him 0.7 ml every 8 hrs. My personal opinion, for what it is worth, is that it is because of the low dose that he is taking that we don't see recent progress with the hemangioma treatment with propranolol. What experience/knowledge do you have with increasing dose as the child grew older?

THank you in advance
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