I thought I would post an update as to how things are going.
We were able to get a meeting at the Children's Hospital in Calgary back in September. It was a challenge to get a hold of someone, but once we were able to get in contact with the right people, things went quickly and smoothly. We were told at that time we would need to come back in March or April when our baby is closer to the age of 1 to speak to someone in regards to options for treatments.
From our experience, the nearest/best option for treatment for someone in Saskatchewan is the Children's Hospital in Calgary.
Big thanks to jenjay directing us to the Children's Hospital!