Vascular Birthmarks Foundation Forum - View Single Post - eye hemangioma-help please
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Old 02-24-2014, 05:04 PM
momof3inpa2009 momof3inpa2009 is offline
Senior Member
Join Date: Dec 2009
Location: PA USA
Posts: 112

My daughter has one almost exactly as you have described. It's a deep hemangioma in her eyebrow area more towards the nose and it also makes her eye lid droop when it's at its puffi-est. I urge you to check out my blog -read from the beginning till the end (most recent date) My daughter still has hers' it has not went away yet but we did propanolol, timolol, and saw specialists. I truly believe in propanolol because it helps shrink it some so that later on there isn't as much or any extra skin left once the hemangioma does go down on its own some. If you have more questions you can message me. I don't check in much but I try to once in awhile. Good luck to you!!!!
Deep hemangioma on left eyebrow towards nose
Started propanolol Feb. 11th, 2010
Off of propanolol aprox. June 2011
Takes 3 doses per day at 1.3ml
2nd Weaning of prop. not a success back on it March 22. Only one dose of 1.3ml now- 19 months old Did Timolol gel for awhile, stopped, & back on - 4 years old. Off of Timolol -doesn't seem to be doing anything. Surgery was a success!!! April 2014
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