Vascular Birthmarks Foundation Forum - View Single Post - Growing up with a PWS
View Single Post
Old 05-28-2004, 05:21 PM
eprmo eprmo is offline
Senior Member
Join Date: Dec 2003
Posts: 133
Default Re:Growing up with a PWS


I am a mother of a 14 year old freshman, like you. She was born with a Hemangioma, in the middle of her face. She has been having three laser treatments since she was 11. She will have surgery this summer, ..I am sure she understands 100% of what you are saying. if you want to e-mail her, please e-mail me first. I will talk to her about this, and then you and her can take it from there.


PS, as a mother of a teen with a b-mark, let me say to you, I am think it is TRULY WONDERFUL that you came here on your own, and aready I can see what a strong, confident girl you really are!!! I say,,,,YAY, to you!!!!!!
Elissa Rifkin
VBF Developmental Specialist
Reply With Quote