Vascular Birthmarks Foundation Forum - View Single Post - Newbie first thoughts
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Old 07-08-2004, 03:36 PM
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Default Re:Newbie first thoughts

Hi. I have a child with pws and sws. As far as the blebs you are describing from everything I've learned that is cobblestoning. There is a support group just for pws the link is There is a lot of adults on there and parents of child with pws. The site has just been update and you have a place to put your personal web page on there. Several people already have so you might find that intreating. I'm so glad you found us here. I hope you have a wonderful day.
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