Vascular Birthmarks Foundation Forum - View Single Post - question for Hank
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Old 01-22-2005, 08:55 PM
hankbartenbach hankbartenbach is offline
Senior Member
Join Date: Oct 2002
Location: Nebraska
Posts: 533
Default Re: question for Hank

No your post was not offending, I just wanted to get thru to you that he is your son and will always be your son even though he has PWS. In other words I gave you a reality check.
The reason I say this is in more then half the cases I know that deal with SWS, it ends up one parent is more supportive of sws like going to appointments, surgeries, etc, etc then the other parent trys to avoid the problem. Most of the times the mother is the supportive one (in my case), but I have also seen the father being the supportive on, and both share the resonsability.
Knowing your husband is a doctor I did not know what to think, in your sons case it is still up in the air in my opinion, since the condition really has not sunk in yet, it will take sometime for that to happen. Sometimes it happens quicker then others. It is really hard to tell.

I have never taken drops, or escaped the development of glaucoma. I have been just really lucky. I get checked yearly, and last week I got check and found out I have a choroidal hemangioma behind my right eye and it is leaking blood. That is why I have been having blurred vision. But I always have the risk of getting glaucoma at anytime.

Anways, I had seizures until I was two years old, I guess I grew out of them. That is a nother reason I am very lucky, from what I know I can only remember one time growing up when I had a seizure and it was more then ten years ago.

I hope this helps,

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