Vascular Birthmarks Foundation Forum - View Single Post - Lasting Laser Therapy of Port Wine Stains
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Old 04-24-2003, 09:56 PM
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Default Re:Lasting Laser Therapy of Port Wine Stains

Hi Purple,

It sounds like you are speaking of Dr. Morelli.

The fact of the matter is that it is rare to have full eradication of the lesion and very false to tell patients otherwise. Many patients have deeper components of their lesion that laser simply cannot reach with current technology. If thjs doctor is saying that patients NEVER return, possibly it is b/c they move or he has convinced them it is not necessary to return. The rule of thumb at least with those I consider leading specialist dealing with pws is that you will normally see some return of color within a certain number of years with the average being 3-5 years. As soon as one sees it pink up, they should return for a maintenance treatment. There really is not absolutes when it comes to pws and its treatment because they are so individual. So many factor affect laser results such as age, skin color, size and depth of the vessels involved, laser, parameters, cooling method and the experience of the doctor.

The fact of the matter is that anything that is resistant or not the laser was not able to reach continues to progress with time. Therefore, it is the hope of those with children or have a pws that technology will improve to help with better results and find a way to either restor nerve function or fully eradicate the darn thing.

If this doctor laughed at what was written on this site, then he is very misinformed himself and should read true data from more prominent vascular anomalies specialist that are on the same SWS advisory board as he is.

My daughter has been seen by three leading specialist in the field of vascular anomalies and treated by two of them, one in Texas and the other in New York City.

Her photo is displayed on the front page of this site. As you can see, she had good results. The entire pws faded 98% after just 3 treatment, but it was all still there. There was no difference in its size.

Unfortunately just 3 months after that photo was taken her pws began to darken and we are once again having to seek treatments. That blows your peds docs theory that treatment is permanent!!! It is not in the majority of cases. It might be months, 1year, 3 years, 5 years, 10 years or more, but it will most likely begin to rear its ugly head as what remains progresses!

If he wants data, have him join the email support group and he will find that his claims are very untrue. Too many folks who get little to no results and do have to go in for maintenance treatment.
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