Vascular Birthmarks Foundation Forum - View Single Post - Klippel-Trenaunay - How important is diagnosis?
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Old 08-10-2005, 08:46 AM
juliemn juliemn is offline
Senior Member
Join Date: Sep 2004
Posts: 95
Default Re: Klippel-Trenaunay - How important is diagnosis?

Hi Liesbeth,

First of all, welcome.* You have valid concerns about your little girl.* I would definitely seek out a doctor that can either diagnose or clear her of KT.* I'm not sure where you are in SD, but right next door in Minnesota there is a doctor at the Mayo Clinic that works with KT patients.

I know there is sometimes special circumstances with KT affected people that make laser therapy unadvisable.* I'm working on memory of something I've read, but I believe it has something to do with infection and/or cellulitis?* Someone here could probably clarify this better, or I could do a little digging for you.*

Check out these information links.* There, of course is info here at the VBF site, and then there is info here also: (Minnesota based support group)

Good luck to you!

(mom to Ben)
Julie H
Mom to Ben (multiple AVM's, PWS, SWS)
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