Vascular Birthmarks Foundation Forum - View Single Post - 23 yr old female Vascular Malformation or Hemangioma?
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Old 09-25-2005, 05:39 AM
juliemn juliemn is offline
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Join Date: Sep 2004
Posts: 95
Default Re: 23 yr old female Vascular Malformation or Hemangioma?


What you read about partial removal is correct.* If the entire malformation was not removed it can grow back.* In fact, it some times can grow back more aggressively.* Please don't take that as a scare...just want you to be totally informed.

A couple of questions:

Did they do any imaging or testing before removal such as an MRI/MRA, ultrasound, angiogram(usually reserved for AVM and VM)?
Was it removed by a surgeon familiar with vascular malformations?

Vascular malformations are not always associated with syndromes.* In fact, the syndromes associated with vascular birthmarks are usually the exception..not the norm.* You will find several people and parents here who deal with these we generally have an overwhelming amount of questions.

If you're at all questioning the results of your surgery, I would definitely seek the advice of a vascular anomalies specialist.* It might not be a bad idea to start right here at the VBF site.* There are several ask the expert doctors available for questions via email.* I've used this myself, and received a reply within a day.* In fact, I'm still communicating with the doctor on a fairly regular basis.

If you have any questions, feel free to email me

Julie H
Mom to Ben (multiple AVM's, PWS, SWS)
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