Re: Venous Malformation under eye
Welcome to the group.
I am Hank 23 with PWS/SWS I also have a AVM in one eye and a choroidal hemangioma behind the other.
Since you are in NY I would recommend you going to see Dr. Waner. He is my doctor for plastic surgery on my PWS. But he also sees people with VM's among several other conditions.
He has eye doctors that work with him every once and a while like Dr. Aaron Fay. Maybe they can help your daughter's condition.
You can find all of Dr. Waner's office info in the resource section under find a physician then go to NY.
I hope this helps.