Vascular Birthmarks Foundation Forum - View Single Post - Talking to a Child about thier PWS
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Old 03-07-2006, 01:48 AM
eprmo eprmo is offline
Senior Member
Join Date: Dec 2003
Posts: 133
Default Re: Talking to a Child about thier PWS

If you need to talk about your situation, I'd be glad to help in any way I can. My daughter grew up with a large H on her nose, and did not recieve any treatment until she was 11 years old. We dealt with all the issues you are concerned with, and jaci explained about her nose all the time. yes, she was tired of it and got very frustrated with feeling different.... but under the circumstances and the outcome, i would say,,she did great!

You can email me directly, and we can "chat"

Elissa Rifkin
VBF Developmental Specialist
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