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Old 11-18-2008, 07:29 PM
chasingdawn chasingdawn is offline
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Join Date: Nov 2008
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Default treatment for old pws on arm?


I am wondering if anyone here has experience on receiving treatment on an older PWS on a limb. I am 22 years old and I have a PWS covering most of my left arm/hand. I received laser treatment when I was in elementary school, but I stopped receiving treatment after that although I'm not sure why and I haven't seen anyone for my PWS since.

I'm not really bothered by my PWS and have no desire to have it removed for cosmetic purposes. However I know that they tend to rise, darken and the skin of my PWS may thicken as I get older. This has led me to consider looking into treatment again. Is this pretty much guaranteed to happen without treatment? Has anyone experienced this with a PWS on a limb?

Thanks to anyone who can help or give advice.
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Old 11-29-2008, 02:14 PM
michelle.karim michelle.karim is offline
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Join Date: Nov 2005
Location: Essex, United Kingdom
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Hi, My son Sam is 12 years old and has a PWS on his left hand and arm. He has just had his first treatment. Sam did not want the treatment for cosmetic reasons either, but decided to go ahead because we were told that cobbling (thickening etc) will definitely occur if treatment is not given. There were signs of Sam's PWS already changing - the doctor pointed tiny dark red dots within the PWS (very hard to see) and apparently these are the first indications.

He had his treatment on Thursday at Great Ormond Street Hospital in London by Dr Syed and they were brilliant. He had a local anaesthetic cream applied and we have been bathing his arm in iced water and applying a cream and dressing since then. Dr Syed did tell us that the skin on the back of the hand is far more sensitive when treating so may hurt more. I hope this gives you encouragement to try your treatment again. Michelle.
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