Concerned mother of 9 week old with PWS - Vascular Birthmarks Foundation Forum
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Old 10-16-2009, 05:17 AM
RLynnWray RLynnWray is offline
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Join Date: Oct 2009
Posts: 1
Smile Concerned mother of 9 week old with PWS

My daughter was born with a port wine stain on the left side of her face and is now just 9 weeks old. Our pediatrician suggested we meet with a pediatric dermatologist to discuss her treatment. I'm afraid I'm going to be an emotional mess and will draw a blank on questions during our visit. For those of you who have already had these visits, is there anything in particular I should be asking about? My concerns include glaucoma, Sturge-Weber Syndrome, hemangiomas, etc.

Any advice would be welcomed.

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Old 10-16-2009, 01:35 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Hi and welcome!

Write all that down on a piece of paper to take to the appointment!

Treatment options -
-when to begin
-anesthesia or not?
-kind of laser to use?

-glaucoma testing
-what to look for re: seizures

That should get you started. Seriously, doctors appreciate it when you write down your questions or concerns. That helps assure that all of your questions get addressed.

Others will add to this, I'm sure.

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