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Old 05-04-2006, 11:16 AM
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Exclamation Tissue expansion

If a portwine birthmark has the possibility of returning after many laser treatments would a tissue expansion (skin regrowth) solve this by replacing the affected skin? I ask, because I am a 32 year old with a hand size port wine stain on my knee and have desperately wanted it removed my whole life. I am looking at options and think that if possible the complete removal of that skin would be my best bet. Anyone have any experiance or thoughts on this subject?
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Old 05-07-2006, 03:16 AM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 533


First of all welcome to the group.

I personally have not heard of this surgery before. I would think if you expanded it the PWS would expand with it. That would be a good question for Dr. Levitin and Dr. Waner. If you got to the front of this website and click on ask the sergeoun you can post this question to Dr. Levitin.

As of technology get better there might be a better treatment option, but as of right now laser treatment is still the best. I have been having laser treatment for over 18 years now off and on. I started when I was five years old. I agree with you when you said that every day we wish we did not have this PWS, but because I have facial PWS and am a guy it is a lot harder to cover my birthmark. We have to live with our conditions and make the best of what we got. I would not be the person I am today if I never had a birthmark, same goes for you. There is a reason for everything and there is a reason both of us have PWS we just have to find that reason and run with it.

I would like to hear more about your experences with PWS. If you would like to read my story you can read it in the story section or you can read it on my website www.hankspws.com

Talk to you soon.

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Old 05-07-2006, 04:29 AM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

I agree with Hank... email Dr. Levitin/Waner. Dr. Waner has surgically removed some pws. Not usually done, but in some rare cases he has been able to do this or decided it was better then laser tx.

GOod luck. keep us posted

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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