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Old 01-13-2005, 09:25 PM
hankbartenbach hankbartenbach is offline
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Join Date: Oct 2002
Location: Nebraska
Posts: 533
Default Eye problem

Hi everybody,

I was wondering if anybody has ever had a choroidal Hemangioma behind the eye. I just found out from the eye doctor that I have this behind both eyes. Still do not have Glacouma, but the Hemangioma behind my right eye is leaking. I will be seeing a Retina Specialist as soon as I can get in to see if Radiation will work to bring my sight back.


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Old 01-13-2005, 10:01 PM
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Default Re: Eye problem

I am sorry to hear about this. Unfortunately this is a part of SWS. There maybe other treatment options out there. Dr. Fay that works with Dr. Waner is wonderful. If I can help you in any way please let me know.
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Old 01-14-2005, 12:31 AM
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Default Re: Eye problem

I don't know if this is helpful, but, I have a venous malformation behind my left eye. Dr. Alex Berenstein is going to do sclerotherapy. I was referred to him by Dr. Waner.
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Old 05-08-2006, 04:03 AM
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Anne, I also have a VM behind my left eye. Did you have sclerotherapy done? Does the VM effect your eyelid? My eyelid is swollen and the vessels are visible in the left corner of my eye and under the lid. It is uncomfortable at times but I've had it since birth so able to deal with it for the most part.

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