PWS hereditary? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Individuals Living with Birthmarks > Adults Living with Birthmarks

Thread Tools Display Modes
Old 09-25-2006, 06:57 PM
djdoc djdoc is offline
Junior Member
Join Date: Sep 2006
Location: Lima, Peru
Posts: 10
Default PWS hereditary?

Hey everybody:
I recently have found that in some cases PWS are hereditary. How many of you have children? And does any of that children got the PWS too?
Dj Doc says Relaxxx
Reply With Quote
Old 10-02-2006, 03:00 AM
hankbartenbach hankbartenbach is offline
Senior Member
Join Date: Oct 2002
Location: Nebraska
Posts: 533


I know of one person that has PWS on her spine and head and that has had three children with PWS. The first two just have little spots on their body. But the last one had PWS with Sturge Weber Syndrome and has had severe seizures and has had a couple brain surgeries. So far there has not been any research to see if her and her genics have been linked to her children having PWS but it is possible.

Thought I would share.

Reply With Quote
Old 02-13-2007, 03:41 AM
Island Island is offline
Junior Member
Join Date: Feb 2007
Posts: 15

I would like to know...does anyone else have information on this? Ive often wondered if I'm going to be passing this on to my children..
Reply With Quote
Old 03-09-2007, 10:47 PM
Aprilsmom Aprilsmom is offline
Junior Member
Join Date: Feb 2006
Posts: 15

I am not an adult with PWS, my 18 month old daughter has a PWS. I read this thread to learn all I can. That being said, she is the 1st on either side of our families to have a PWS. She is the youngest of three girls and my oldest had a small strawberry mark that went away when she was 3. My middle daughter has a small brown birthmark on her back.

I also wanted to add that a good friend of mine growing up has a PWS covering her right cheek. She has two sons and neither has a PWS. Hope this helps.
Reply With Quote
Old 03-16-2007, 03:34 AM
Aussie legs Aussie legs is offline
Junior Member
Join Date: Mar 2007
Posts: 17

Hi Raul,
My name is Ann from Australia and I am 38, I have 4 kids, (2boys & 2 girls) and none of them have any birthmarks. I was the first person in my family to have a PWS and mine is quite a large one all over the back of my legs, so I hope this will put you at ease a bit, I'm not a doctor but I'm sure you wont pass it onto your kids.
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Are hemangiomas hereditary? manijo Help and Resources for Hemangiomas 21 03-20-2010 04:51 AM
Are Vascular Malformations Hereditary? Cinderella22 AVM Help and Resources 2 07-10-2008 04:53 AM