New to the boards, have question about vincristine - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Additional Resources > General Resources

Thread Tools Display Modes
Old 04-18-2008, 04:36 AM
CelesX CelesX is offline
Junior Member
Join Date: Apr 2008
Location: New Kensington, PA
Posts: 2
Default New to the boards, have question about vincristine

My son was born with a tufted angioma on his left ankle. They started treating him with steroids, because they believed it was a cavernous hemangioma. After a few months of the steroid treatment, they decided to do a biopsy and finally diagnosed it as a tufted angioma.

They put a broviac tube in him when he was 4 months old and started him on vincristine. He had very little side effects from the vincristine itself, however he was hospitalized several times for blood infections because of the broviac tube. Eventually, right before his first birthday they ordered a mediport for the vincristine instead and thankfully he hasn't had any more infections.

They started decreasing the frequency of the chemo; he used to go once a week and now he's on once a month. I have to make another appointment with the plastic surgeon soon to see if there's any way he can remove it. As of this time last year, he said that it was too big and too deep for him to safely remove it.

I was wondering if anyone else has had a child or themselves on vincristine and if it was successful?

I'm new to the boards and my spelling isn't that great, so sorry for any errors.
Reply With Quote
Old 04-18-2008, 12:28 PM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Look at this:

Running a quick search will bring up all the mentions, but you'll have to look through a couple of threads to find parents' experiences.

Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Venous Malformation Question my4kids0044 AVM Help and Resources 1 06-27-2007 01:08 PM
Please help answer question.. Leviathan Youth and Teen Support 4 11-27-2006 03:03 AM
After laser healing question. alexasmommy Port Wine Stain Help and Resources 5 09-14-2006 03:34 PM
Question confused Port Wine Stain Help and Resources 13 09-14-2005 01:50 AM
question for Hank Gail G Port Wine Stain Help and Resources 1 01-22-2005 08:55 PM