Daughter with PWS - am I being OTT? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 05-29-2008, 11:08 AM
Jaelor Jaelor is offline
Junior Member
Join Date: May 2008
Posts: 1
Default Daughter with PWS - am I being OTT?


My daughter is 10 weeks old and has a suspected PWS on her left thumb. The front of the thumb is discoloured / mottled and the sides and back of the thumb are red, leading down to quite an intense red patch on her palm under her thumb. When she's cold, it goes quite a deep purple, at other times, from the front at least, its minimal.

My GP said to just leave it until she's 3 or 4 and see what happens and that they don't usually do anything unless the PWS is on the babies face. Is this the right advice? I keep reading that the younger the better where laser treatment is concerned.

Am I being over the top? I know there are alot of people out there with much larger PWS and in more obvious places, so should I just leave it? I just have this vision of her starting at school and all the kids making fun of her. Should I try and get rid of it for her?

I'm becoming obssessed with it - I'm so worried that I'll miss the window of opportunity in getting rid of it for her.
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
New mum daughter has facial PWS Gems Port Wine Stain Help and Resources 2 06-09-2008 06:42 PM
daughter w/ H between eyebrows msbip2002 Help and Resources for Hemangiomas 3 01-20-2008 09:15 PM
Daughter 2 1/2 year old- avm on brain kiddiemom3 Port Wine Stain Help and Resources 10 02-05-2005 06:53 PM
Daughter 2 1/2 year - avm on brain kiddiemom3 General Resources 2 01-29-2005 09:41 PM
Daughter age 2 1/2 avm in brain kiddiemom3 AVM Help and Resources 1 01-21-2005 07:15 AM