I am interested in seeing pictures with results of other children with port wine birthmarks. We have a 4 month old daughter with a facial, neck,abdomen,back and foot port wine stain and are interested in knowing what we have to expect with long term treatment. Claire has already had one small test facial treatment and we go in December for the first full one. Any information or pictures would be appriciated. I will attempt to put our first pics on here soon.
I will send pics if I can figure out how to add them. I'm not very technologically inclined so may have to wait for my husband to help or send them via email. If I don't post soon, email me and I will send them that way.
If you want to email me at firstname.lastname@example.org, I will be happy to send you pictures of my son's progress.
He's 14 months old and has had two treatments (due for another in December) for a PWS on his left cheek. We've seen tremendous improvement with just two treatments. I have chronicled his birthmark month by month and can send it to you in .jpg format.
Have you found the website birthmarks.com yet. Both this website and birthmarks.com are very informative. Birthmarks.com is mainly for people living with PWS. There are ALOT of pictures on people's personal webpage. You have to become a member to view them, it's free. Good luck with your baby. My son is 3 yrs old and has a PWS on his forehead. He has had 5 treatments.
An international charitable
organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment,
provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance
for individuals with birthmarks.
Here you will find information and resources for patients and families affected by hemangioma, port wine stain,
arteriovenous malformation, capillary malformation, lymphatic malformation, Sturge Weber syndrome, Klippel-Trenaunay syndrome, and any other type of vascular birthmark
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