PWS - Cause of pain? - Vascular Birthmarks Foundation Forum
  Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder

Donate to VBF    Shop VBF Products

Go Back   Vascular Birthmarks Foundation Forum > Port Wine Stain Help > Port Wine Stain Help and Resources

Thread Tools Display Modes
Old 02-05-2009, 08:20 AM
frt12 frt12 is offline
Junior Member
Join Date: Feb 2009
Posts: 1
Default PWS - Cause of pain?

Greeting folks

I have a large percentage of my body covered in Port Wine Stains, including my entire left arm. Im 26, and for the last few years I have had ongoing pain issues with it, which conventional physiotherapy/osteopathy has not helped in any meaningful way. What I am wondering is, can Port Wine Stains contribute to pain? Has anyone experienced pain that they cannot attribute to other causes, and think that PWS might be responsible?

Thanks for your time
Reply With Quote
Old 02-06-2009, 04:46 AM
monkeymoo monkeymoo is offline
Junior Member
Join Date: Feb 2009
Location: near Kansas City, MO
Posts: 4

Dear frt12,

Interesting that you posted that question as that's what led me to this forum today (1st time). I'm 40 and have most of the upper right third and arm covered in a PWS. I've been experiencing a lot of changes to it and most recently have been experiencing pain. I'd always been told before (when I saw doc when I was much younger about this) that it couldn't/wouldn't cause pain, but I'm for sure feeling it now.

In the past ten years, I've developed numbness (comes and goes), a sort of numb uncomfortable ache in my right hand (esp fingers) when cold and my birthmark goes dark purple/blue. In the last year, I've had to take medication for unspecified neuralgia for tingling, stinging sensations in my right hand where my PWS is. Now I'm experiencing pain and a burning sensation in my right shoulder and chest area as well.

I don't really know the answer as to whether a PWS can cause pain, but I know I'm sure experiencing it and only in the area of my PWS, so I can only assume it's related somehow. Perhaps someone out there with more knowledge/experience can advise further?
Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Given no pain med after ulcerated hemangioma sommer1978 Help and Resources for Hemangiomas 7 05-26-2009 03:39 AM
Pain killers before laser? mikeb23ft Port Wine Stain Help and Resources 6 03-23-2006 10:21 PM
Dealing with Pain from AVM Sarah H AVM Help and Resources 3 12-27-2005 12:49 AM
Adult with pain/ need moral support Lisa R. AVM Help and Resources 1 04-28-2005 08:48 AM