Hemangioma Treatment Stats and Suggestions?? - Vascular Birthmarks Foundation Forum
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Old 03-29-2009, 08:04 PM
Erin Erin is offline
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Join Date: Mar 2009
Posts: 1
Default Hemangioma Treatment Stats and Suggestions??

My daughter will be two on April 5. Her hemangioma is located on the right side of her neck, with a fairly significant portion internal. We have had NO medical issues with her hemangioma. The MRI results indicate that it does not interfere with anything internally (ie airway related). We have been talking with a ped derm and a surgeon who have narrowed down the options to kenalog steriod injections or laser treatments to be followed by surgery. They are not, and we are not, willing to surgically remove anything at this point. Their guess is that since it has not spotted growing it will continue to do so, so we should begin acting now. I wonder if we just sit tight and wait it out, if we can limit medical action to a surgical removal of the excess skin after it shrinks down all or partially. Does any one know where I can find some actual data on these suggest treatments? And, what are your thoughts or experiences on allowing time to work for us - it has continued to grow, but has slowed and is no longer a bright red. I have attached a photo of my girls so you can see her hemangioma. Thanks!
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