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Old 04-16-2009, 01:10 PM
ttn ttn is offline
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Join Date: Apr 2009
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Default superficial hemangioma treatments

My 6 weeks old daughter had 1 PDL treatment to a superficial hemangioma above her eye lid. We are seeing a hemangioma specialist (who is a surgeon & has not used propranolol for hemangioma) & a pediatric ophthalmologist.
My questions: We consulted with an adult dermatologist (no pediatric one on our area) & she suggested propranolol. She has never tried propranolol.
1.Where can I obtain information on propranolol dosage, how to wean off etc. She's 6 lbs-should she be monitored for low blood sugar & low blood pressure?
2. Should she begin propranolol while receiving PDL or wait and see results of laser treatments? Given the location of the hemangioma, I want to be as proactive as possible
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Old 04-17-2009, 01:23 AM
missy missy is offline
Join Date: Apr 2006
Posts: 1,794

Someone will be along to answer your questions soon. In the meantime, could you post a photo? It's helpful to know what the size and exact location might be... will it grow to affect eyesight, etc.

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Old 04-17-2009, 06:12 PM
nickbar nickbar is offline
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Join Date: Aug 2003
Location: Pacific Northwest
Posts: 1,054

This a very good and critical questions. I would highly recommend having these questions answered by a physician that is using the Propranolol and also does laser. Dr. Waner is one option.. email him via the "ask the expert" on the main page of this website. IF you need any help, please let me know.

Corinne Barinaga
VBF Director of Family Services
vbfadvocate @ live. com (no spaces)
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Old 04-17-2009, 09:18 PM
Tamia Tamia is offline
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Join Date: Mar 2009
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The original New England Journal of Medicine article mentions the treatment dosage they used.
2 mg per kilogram per day.

Also, there is a 30 day clinical trial on infants under 3 months currently being done in France. The dosages are also listed in their article.
30 days-propranolol treatment : 3 mg/kg 15 days + 4 mg/kg 15 days
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